The Barth Syndrome Foundation Inc.

Providing information internationally regarding Barth Syndrome to physicians, scientists and families affected by Barth Syndrome

Conducting of educational conferences in the fields of medical and scientific research, health, and health syndromes and distribution of training materials in connection therewith; "BARTH SYNDROME CONFERENCE"

Providing medical information internationally regarding Barth Syndrome to physicians, scientists and families affected by Barth Syndrome

Providing information internationally regarding Barth Syndrome to physicians, scientists and families affected by Barth Syndrome; "BARTH SYNDROME FOUNDATION"

providing information regarding Barth Syndrome to physicians, scientists and families affected by Barth Syndrome; "BARTH SYNDROME REGISTRY AND REPOSITORY"