EveryLife Foundation for Rare Diseases

Description: Rental of office space; rental and rental property management of offices and work spaces for shared working

Description: Promoting public awareness of rare diseases and the interests of rare disease patients and caregivers by means of public advocacy; promoting public awareness of rare diseases through an annual event; promoting awareness of the need for policy changes and legislative action to benefit the rare disease community; promoting collaboration between the scientific, research, and medical communities to achieve advances in the field of rare diseases; arranging and conducting lectures and workshops in the field of rare diseases; arranging meetings to facilitate Congressional awareness in the field of rare diseases

Description: Educational services in the field of advocacy for the rare disease community; providing resource services to rare disease patients, caregivers, and organizations for the purpose of educating and empowering rare disease patients, caregivers, and organizations in the field of advocacy and public policy; providing information, newsletters, and webinars in the field of rare diseases